The hardest thing is acceptance!

To be  honest with you, this is the hardest thing that I ever have had to face. My food intake is getting to the point where it can barely sustain my existence. I know the question of starving to death, which would take months and be extremely painful unless I can get a doctor that believes …

If you get bad news, buy caviar!

I haven’t been posting lately because my health has taken a sideways turn. My primary doctor did a three month blood work up and my iron is now sky high and my vitamin B6 is off the roof. Normal is 30 and mine is in the hundreds. My doctor called the next day to check …

The realities of the dumping syndrome

To say that I have the dumping syndrome, is not to explain what that is going to mean to the rest of my life. I heard one nurse say that I would never have a normal meal again. At that time, it was almost impossible to wrap my brain around it, but I had excellent doctors. I take …

The joys and challenges of incontinence

I have become a woman of accessories. Some are for the cramping pain of my limited stomach and my intestines. Others are for what that cramping might have been predicting. Explosive diarrhea or bowel incontinence, where each  passing of foul gas produces an accident. Sure, they make panty liners and adult diapers for urine incontinence, but …

Customizing my diet

Since I have several different health issues that cause diarrhea, factoring in the dumping syndrome has been a difficult challenge.  Prescriptions, over the counter medications and food supplements from the health food store help to a degree, but in the end, it all comes down to diet.  Eating a bland soup with crackers sooths the …

Hello world!

My name is Elaine. I am 58 years old and live on the central coast of California. Since I was 14, I have suffered from bleeding ulcers. In my fifties, I developed gastroparesis in my stomach and upper intestines for which the doctors never found a cause. A year and a half ago, I had a rather large ulcer, …

The new unfortunate face of healthcare

In California, they call them Community Health Centers (CHC).  Apparently, the idea is going National because I heard Dr. Sanja Gupta talk about them on CNN. The truth of the matter is that in the Center, (Clinic), you have a choice of one doctor if you live in a rural town like I do. This …

The balancing art of regulation

My food journal has become vital to me. There was a period of thirteen days that I didn’t have any sort of a bowel movement. The bit of stomach that I do have left and my intestines stretched with each day, causing me to look like a pregnant grandmother. I decided that measuring it would …

Who ordered the double looped roller coaster?

Since my grandsons went back to Oregon, I have been fighting a deep depression. I only get to see them maybe twice a year. On the phone, the older one will carry on a conversation, but the younger on is too antsy at his great age of eight, so keeping in touch is a challenge …

Doctors, more doctors, grandchildren and FUN!!!!

I think I have officially crossed the line from being an aching client to a professional patient. I have files in my cabinet of all my previous and current doctors. Past blood studies, X Rays, MRIs on every part of my body imaginable, and reports from specialist in San Fransisco. My primary doctor is trying to …

The face of a clown

Most people really don’t  want to hear what you are thinking or feeling, so you give them a short “I’m okay”. You see it in their face and you have certainly been  there before, so you maneuver around the truth to make it all sound so perfectly pleasant in that cheery voice of yours.  You’ve gotten good …

The convulsive process of losing 7 lbs. in 2 days

Hello World, I just got through a rather lengthy, painful emptying syndrome. But that is the rhythm. My caregiver and I went through my food journal where I also put if I had diarrhea or not, to see how many good days I have. It was 16 out of 31 days. That is a disheartening …

Nausea 10 – Elaine 0

In 2005, after I  had just recovered from yet another large ulcer, I was still feeling unwell and was severely nauseated. It was the first time I had it since when I was pregnant forty years ago. The nausea put me down like a rock. Days would go by and I wouldn’t be able to …