To say that I have the dumping syndrome, is not to explain what that is going to mean to the rest of my life. I heard one nurse say that I would never have a normal meal again. At that time, it was almost impossible to wrap my brain around it, but I had excellent doctors. I take every medication known to man and I adjust my diet to include fiber, but it doesn’t seem to matter.
The emptying process has a pattern to it. For aproximately two weeks, I’ll be doing fine, but then the emptying syndrome takes over and the legnth of that process takes about two weeks as well. At times the pain would get so bad that I would want to curl up in a ball and get through it, but there were things to to. I had a family.
Something in my stomach smells so foul, that I lose my appetite and I don’t enjoy the food I eat. I have been vomiting lately, but I am not alarmed because I know it is part of the process. Even when I enjoy the food, if I am in the middle of the emptying syndrome, it doesn’t matter. Every passing of gas is so foul, that the humiliation is almost unbearable. People can tell it is you, esecially since you will pass a small amount of bowel when you passed the gas and the smell stays with you. Even cleaning up with baby wipes doesn’t take the smell away until you take a shower. Unfortunately, that wouldn’t be an option since I had several bowel movements a day.
It’s not just the inconvenience or the limited diet or the pain, it is the humiliation of occurrances out in the public. I can’t stop eating, so it is almost like force feeding.
For days, I would wake up in my own feces and the cramping in my stomach would tell me to run to the bathroom, that the emptying is not done and it is a very painful process, since . This is a daily occurance. That is one of the main reasons that I don’t get out, I would be horrified if an accident were to happen. It has happened before and I am still humiliated when I think about it.
I have to accept the fact that I need to learn to live with it and not feel so panicy when I am cramping so severly. I also have to accept that the dumping syndrome, no matter what I do, will last for about four to five days every two weeks or so. Perfume is not the answer. I don’t seem to be able to digest anything very well lately.
I am doing the best I can do and I am sticking to one hundred pounds even. At least I am not losing. It has been a hard week, so I will talk to you soon. I have to go through my food journal to see where I may have indulged. I will talk to you soon,